Nicky's EB Info World ~ A tribute to EB friend and spokesperson: Steve Young
EB
INFO WORLD
A Tribute to EB Friend and Spokesperson:
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Steve Young is more than just a superb athlete (aside
being a hunk of a man-personal opinion, I know, but I am sure it is
shared, LOL). He is an excellent role model for kids, because he truly
cares about them.
In 1998 he was named
the Walter Camp Football Foundation's 1998 "Distinguished American of the Year."
Among other things, the article says that Steve is "an individual
who has successfully paralleled his outstanding professional football
career with an extraordinary effort to help create better lives for
young people in need of help".
But the reason for
this page is to highlight is extraordinary support of the EBMRF (Epidermolysis Bullosa Medical Research Foundation)
to find a cure for Epidermolysis Bullosa.
Aside Princess Diana, who helped our cause by supporting DEBRA UK, he
is the only celebrity spokesperson who does not have a direct reason,
meaning a family member or friend with this devastating condition of
the skin.
Steve
first learned of EB when he agreed to narrate a musical fund raiser
for the EBMRF in Utah. He was so touched by the EB children, that
he has stayed.
He has narrated a second fund raiser in San Francisco,
linked them with the 49er Pledge Program which brings
donations to the EBMRF each year, and narrated their video.
Picture:
Steve Young with with 2 EB patients
He also serves
on the EBMRF Honorary Advisory Board (which also includes Karl Malone
of the Utah Jazz).
He has given donations to be used for EB kids to have
fun and sponsored parties in Southern California, Northern California
and Oregon for EB support groups. He continues to donate his own
money for EB research each year.
Needless to say, we
are very grateful to Steve Young for his great support. His "Forever Young Foundation",
lists EB as one of his favorite charities. You can click here to see the video Steve narrated to promote fund raising
and awareness for the EBMRF-you will need RealPlayer to view it, you
can download it here for free.
The transcript of this video is also available on this website, just
follow this link.
EB is not the only organization
Steve supports, as a matter of fact, his contributions have been vast.
Picture:
Steve Young chats with EB patients, Kelly Drewrey
of Los Gatos, CA, and Henry Riojas of Fremont, CA.
He founded and chairs
the Forever Young Foundation (FYF)
which is actively involved in children's charities in the San Francisco
Bay Area and in Utah. Recently, FYF has focused on a project in two
Children's Hospitals. Both The Lucile Packard Children's Hospital
at Stanford University (which just happens to be where the
only west coast EB clinic in the country is located) and Primary Children's
Hospital in Salt Lake City are the recipients of new, state of the art,
interactive recreational-therapy rooms called Forever Young Zones. These
rooms are created with the intent to provide tools for exercising the
imagination of children who find themselves away from home, facing the
emotional and physical challenges that serious illness brings.
Additionally, he founded
the Sport, Education and Values Foundation which is an official licensee
of the United State's Olympic Committee dedicated to developing educational
and value-based programs for America's youth.
He is currently the broadcast host as well the former
International Spokesperson for the Children's Miracle Network which has raised over one billion dollars world-wide
to benefit children's hospitals.
He is a board member of the American Indian Services.
He was active in Salt Lake City's successful bid for
the 2002 Winter Olympics and continues to participate with the plans
for the event.
Young frequently donates his time to youth groups across
the country as a motivational speaker.
Steve's Biography
and Career Highlights
JON STEVEN YOUNG was born in Salt Lake City, Utah
on October 11, 1961.
Steve was the firstborn of Sherry and LeGrand (Grit)
Young, and was followed by Mike, Melissa, Tom, and Jim. The family moved
to Greenwich, Connecticut when Steve was 8 years old.
Steve showed at an early age that he was unusually gifted
both athletically and mentally. In his senior year at Greenwich High
School, he was captain of the football, basketball and baseball teams,
while earning a 4.0 grade point average, including A's in advanced-placement
calculus, and was a National Merit Scholar. In addition, during Steve's
three years of high school, he arose at 5:00 a.m. each morning to attend
an LDS Church religious class before school.
Although Steve was an option quarterback at Greenwich
High, he accepted an athletic scholarship to Brigham Young University,
(founded by his great, great, great, great grandfather) a school known
for its sophisticated West Coast Offense-style passing game. Though
he started as the 8th string quarterback, he eventually won the starting
job after the departure of former NFL quarterback Jim MacMahon. Steve
went on to set NCAA passing records, was a consensus All American, an
Academic All American, and was runner-up in the Heisman voting in 1983,
his senior year. He was projected to be the number one pick in the 1984
NFL draft. Steve opted, instead, to go with the new USFL (United States
Football League) and signed to play with the L.A. Express. L.A. was
closer to home (Provo, Utah), and he thought he would have the opportunity
to start at the quarterback position right away-something that probably
wouldn't happen in the NFL. In 1985, after the USFL folded, Steve signed
on with the Tampa Bay Buccaneers, the team that held his NFL draft rights.
He played for the Buccaneers for two seasons, starting 19 games, and
in 1987 was acquired by the San Francisco 49ers. Steve sat behind then
49er quarterback, Joe Montana, for four years. In the 1991 season after
Montana was forced out by injuries, Steve lead the NFL in passing efficiency
with a 101.8 quarterback rating his first year as the starter. He has
garnered this honor in 6 times, and holds the all time highest NFL quarterback
rating of 112.8 for the 1994 "Superbowl" season.
Although it was difficult sitting on the bench, Steve
is the first to admit that his years of backing up Joe Montana were
an excellent tutorage for becoming a Pro Bowl quarterback. During that
time, in addition to learning the intricacies of quarterbacking from
a master, he was also learning the intricacies of the law at Brigham
Young University's School of Law, receiving his law degree in 1994.
Steve has led the San Francisco 49ers to winning seasons
in each of the 7 seasons he's been the starting quarterback, having
won at least 10 games or more each season. Although slowed by injuries
during the 1996 season, which caused him to miss all or part of 8 games,
Steve still won the NFL passing title with a quarterback rating of 97.2.
In 1997, he won the passing title again with a 104.2 rating. 1998 was
a big season for Steve where he was said to be playing at the top of
his game, and at 37 years old. He set a new record for consecutive games
of over 300 passing yards at six games, and a total of over 4,000 yards
for the season. He broke his previous 49er record, throwing 36 touchdowns.
In 1993, Steve organized the Forever Young Foundation, a charitable
foundation that has raised large sums of money to aid youth organizations
and other charities in the San Francisco area, and in Utah and Arizona.
He plays a direct role in the foundation's administrative, fundraising,
and community activities.
HONORS AND AWARDS:
Steve has been selected to the pro bowl 7 consecutive times since becoming
a starter and holds the pro bowl record for number of TD's thrown (4).
He has won two NFL Most Valuable Player Awards in 1992 and 1994. In
1992 he was named "Bay Area Sports Hall of Fame Professional Athlete-of-the-Year.
He was named Sports Illustrated Player of the Year in 1992 and 1994;
Sporting News Player of the Year in 1992 and 1994; and NFL Player of
the year in 1992 and 1994. He has twice been awarded the Len Eshmont
Award by his teammates, an award given to the 49er who was the most
inspirational player during the season (1992, 1994). In 1994, he lead
his team to the championship in the Super bowl, throwing a record 6
touchdown passes.
HOLLYWOOD STEVE:
Steve has appeared on "Late Night With David Letterman" several
times, and on the "Tonight Show" with Jay Leno. He was also
a contestant on "Wheel of Fortune", and has appeared in the
television shows "Beverly Hills 90210", "Wings"
and "Lois and Clark". In 1998 Steve had a role on "Dharma
and Gregg" and played himself. Steve is single, and splits his
time in the off season between homes in Provo, Utah, Park City, Utah,
and Palo Alto, California.
My child has a
skin problem called Epidermolysis Bullosa.
This is a long fancy name for a condition of the skin
where a certain protein is missing from the top layer of the skin
called the epidermis. Because the skin is missing this protein, blisters
develop easily. This can occur after a slight bump of the skin, or
can occur on the bottom of the feet from walking too much. Many of
these blisters are painful, but most people with EB get used to them
over time. My child will often wear bandages to protect the skin and
allow healing underneath.
This condition is not contagious. You cannot catch
anything. Unfortunately, there is no cure for EB right now,
but many doctors are working to find help for EB. If
you wish to donate money or to find out more about EB, we would appreciate
your contacting the following national organizations which are looking
for a cure.
Thank You for your concern.
EBMRF
130 Sandringham Road
Piedmont, CA 94611
Tel (510) 530-9600
DebRA of America,
Inc.
40 Rector Street,
Suite 1403
New York, NY 10006
Telephone: (212) 513-4090
- Fax: (212) 513-4099
I don't know of
any disease that children face that causes such long term suffering.
You know, you have children that have things that take their lives,
but, this disease, they suffer emotionally and physically for a long
long time before they either die or...well, and actually
in the severe forms that's what happens.
Lynn Anderson (President of EBMRF)
Playing:
What a Wonderful World by Luis Armstrong Some
People make the world more special just by being in it.
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Silvia | Sleeping
Angel Web Design Last Updated: Thursday, November 21, 2002