Nicky's EB Info World ~ Princess Diana and the EB Children-A Tribute

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This site is dedicated to the memory of Diana, Princess of Wales: a woman of beauty, poise, talent and courage. She left this world a better place than the way she found it. Although she may have been a Princess, her life was not always a fairy tale.
Who can deny the tremendous impact her short life made on the world? What is astounding, is the tremendous difference she made in her charities, and DEBRA U.K. was no different. D.E.B.R.A is the "Dystrophic Epidermolysis Bullosa Research Association", an organization that helps sufferers of EB, Epidermolysis Bullosa, in the U.K.
The Princess became involved in DEBRA after reading an article in a woman’s magazine. She subsequently became invaluable in raising the profile of what was then a very small charity and through her involvement the charity grew considerably. They have even been able to help EB parents in the U.S. She touched the lives of many, and EB sufferers have benefited immeasurably from her practical care and concern.

Donate to the Diana, Princess of Wales Memorial Fund
D.E.B.R.A. U.K. was one of Her Charities

Click Here for a photo of Princess Diana with Oliver, a child with EB He was one of those with EB representing DEBRA in the official funeral procession.

"EB is a terrible disease. Research will provide new methods of diagnosis and treatment. Thanks to DEBRA, further amazing breakthroughs could transform hope to reality for people with EB within the next few years. I fully endorse DEBRA’s commitment to research."
Princess Diana

The tragic death of Diana, Princess of Wales occurred on Sunday, August 31st 1997, at 4:41 AM London Time, following a car accident in Paris, France. The vehicle in which the Princess was traveling was involved in a high-speed accident in the Place de l'Alma underpass in central Paris shortly before midnight on Saturday, August 30th. Her car was being chased by photographers on motorbikes at high speeds when the crash happened in a tunnel under the Seine. The Princess was taken to the La Pitie Salpetriere Hospital, where she underwent two hours of emergency surgery before being declared dead. The Princess's companion, Mr Dodi Fayed, and the driver of the vehicle died in the accident, while a bodyguard was seriously injured.

The death of Diana Princess of Wales was a blow to members and friends of the Charity DEBRA to whom she was a very valued patron and friend between 1992 and 1996.
John Dart, Director of DEBRA UK said: "The Princess contributed a unique mix of concern and publicity which has helped good causes, ours in particular, the world over. We are devastated by her death remembering particularly her two children. There are many people with EB who have great cause to be thankful for her life because she has IMMEASURABLY enriched theirs."
DEBRA UK members and children with EB were grateful for the opportunity to take part in her funeral procession and attend her funeral service in the Abbey.

DEBRA UK has set up the ‘Princess Diana EB Memorial Research Fellowship’ in her memory. This Fellowship is dedicated solely to the discovery of a cure for EB as this will be the finest possible everlasting memorial to her commitment to the elimination of the suffering of all those who will ever be born with the condition.

Princess Diana was involved with helping numerous charities. When asked why she replied "There are many people in the world who need to be loved and someone has got to do it." Diana shocked the world by touching and hugging people that had AIDS, leprosy, and other deadly diseases. In the famous BBC interview she said:
"I found myself being more and more involved with people who were rejected by society - with, I'd say, drug addicts, alcoholism, battered this, battered that - and I found an affinity there.
And I respected very much the honesty I found on that level with people I met, because in hospices, for instance, when people are dying they're much more open and more vulnerable, and much more real than other people. And I appreciated that."
Later on, in the same interview, she also said this:
"I've been in a privileged position for 15 years. I've got tremendous knowledge about people and how to communicate. I've learned that, I've got it, and I want to use it.
And when I look at people in public life, I'm not a political animal, but I think the biggest disease this world suffers from in this day and age is the disease of people feeling unloved, and I know that I can give love for a minute, for half an hour, for a day, for a month, but I can give - I'm very happy to do that and I want to do that.
I think the British people need someone in public life to give affection, to make them feel important, to support them, to give them light in their dark tunnels.
I see it as a possibly unique role, and yes, I've had difficulties, as everybody has witnessed over the years, but let's now use the knowledge I've gathered to help other people in distress."

" A girl given the name of the ancient goddess of hunting, was in the end the most hunted person of the modern age."

"My sister - the unique, the complex, the extraordinary and irreplaceable Diana..."

"Diana was the very essence of compassion, of duty, of style, of beauty. All over the world, she was a symbol of selfless humanity. All over the world, a standard-bearer for the rights of the truly downtrodden, a very British girl who transcended nationality. Someone with a natural nobility who was classless and who proved in the last year that she needed no royal title to continue to generate her particular brand of magic."

Earl Spencer, from his funeral address,
Westminster Abbey, London,
September 6th, 1997

Goodbye, England's rose;
may you ever grow in our hearts.
You were the grace that placed itself
where lives were torn apart.

You called out to our country,
and you whispered to those in pain.
Now you belong to heaven,
and the stars spell out your name.

And it seems to me you lived your life
like a candle in the wind:
never fading with the sunset
when the rain set in.

And your footsteps will always fall here,
along England's greenest hills;
your candle's burned out long before
your legend ever will.

Loveliness we've lost;
these empty days without your smile.
This torch we'll always carry
for our nation's golden child.

And even though we try,
the truth brings us to tears;
all our words cannot express
the joy you brought us through the years.

Goodbye England's rose,
from a country lost without your soul,
who'll miss the wings of your compassion
more than you'll ever know.

Lyrics revised and sung by Elton John,
at the funeral of Princess Diana, September 6/97
at Westminster Abbey.

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"Thanks for being a member of the Princess Diana Tributes and Collector's WebRing!
Your site is so moving and full of Loving Diana's spirit!
Thanks so much,
~Leslie (Ringmaster)