Nicky's EB Info World ~ Jamie Gibson's Etheral Christmas

Welcome!
Jamie Gibson's
Good Nignt Christmas

Jamie has a NEW album out for Xmas 2002!

ALL proceeds go to the EBMRF

Good Night Christmas
a blend of traditional and religious songs that will help you celebrate the season

Jamie Gibson is an EB patient whose love for music touched her life greatly. Says Jamie: "The reason for the CD was to make something that people could get back after they make a donation to the Epidermolysis Bullosa Medical Research Foundation." 

Track List:
1. Walking in The Air
2. Christmas Lullaby
3. Jesu, Joy of Man’s Desiring
4. Still, Still, Still
5. O Holy Night
6. Mary’s Lullaby
7. Ave Maria
8. He Shall Be Born
9. Christmas Snow
10. St Stephen’s Day
11. This Christmastide
12. Come Unto Him
13. Angels’ Silent Night

To order CD's:
Click Here to get it!!!

The compact disc costs $15, and all proceeds go to the research foundation. All production costs, including studio time at the Rosewood Recording Company in Provo, were donated by friends and family.

From the Back Cover of Etheral Christmas:
Jamie Gibson is 22 years old. Both she and her brother Benjamin were born with a very rare and serious genetic disorder called Recessive Dystrophic Epidermolysis Bullosa, more commonly called E.B. Ben died of E.B. in 1995. He was 19.

E.B. is primarily known for its blistering effects to the skin and mucous membranes. E.B. sufferers have defective skin and have no protection against bumps and scrapes. Trauma from everyday activities such as eating or brushing one's teeth causes pain, injury and scarring.

Although her hands and feet looked quite normal at birth, Jamie's fingers and toes are now crippled and webbed together, encased in scar tissue which restricts bone growth. Jamie's disorder has also caused deformities and scaring in her mouth and throat. When she was seven her battered esophagus scarred shut and was replaced with a piece of her colon.

Her vocal cords are now slowly eroding through years of reflux because she no longer has a stomach valve. Jamie's mouth and throat are always raw with open sores and blisters. Her tongue is so badly scarred that she can neither lift it to touch the roof of her mouth nor thrust it forward to clearly enunciate.

Jamie has always loved music. She played percussion in Junior and Senior High school until her crippled hands finally stopped her. By 1995 voice became Jamie's sole means of musical expression. It is a lot of work for Jamie to sing. She must train, warm up and focus to get her body to compensate for what she calls "all her EB. things". Jamie refuses to give in to her disabilities. She sings even though people told her she could not. Through hard work and determination, Jamie is a living example of part of her own mission statement - "We are all here to succeed."

A note from the producer:
"When I discovered Jamie's love for music, I knew this CD had to be made. Her heavenly "boy soprano" voice is uniquely amazing. With limited use of her tongue and jaw, and a mouth and throat full of open sores, I marveled during recording sessions at her determination to pronounce words, and hit those high notes! I have never heard one complaint from Jamie. E.B. has physically limited her, but not robbed her of her love for uplifting music and a desire to fulfill her goals. I hope you enjoy these simple songs. They are filled with gratitude for another day of life, a thankful heart, and the blessings of joy and peace. --Gaye Beeson

A note from Lorraine Spaulding:
I have had the wonderful privilege of getting to know Jamie and her mom and dad a little bit, and truly what wonderful people. Jamie is a wonderful inspiration and the voice from heaven that can be heard through her music is an experience I wish everyone could enjoy!! Her CD is my absolute favorite! I listen to it all year long. It is certainly not just for Christmas, it is for anytime I need to feel comfort from the Lord. I truly feel she was given a gift through her voice, and comfort is what I get from listening to it.

A note from the Webmaster:
It is a great privilege for me to be able to make a page to advertise Jamie's CD. The first time I heard it I got chills up my spine, as I know how hard it must be for her to sing. My son, who has the same form of E.B. as Jamie, amazes me every day with his determination and Jamie shows the same determination and love in this CD. This is a must have.

4620

Playing: Le Cose Che Vivi by Laura Pausini
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Last Updated: March 16, 2004