Good Night Christmas
a blend of traditional and religious songs that will help you celebrate
the season
Jamie
Gibson is an EB patient whose love for music touched her life greatly.
Says Jamie: "The reason for the CD was to make something that people
could get back after they make a donation to the Epidermolysis
Bullosa Medical Research Foundation."
Track List:
1. Walking in The Air
2. Christmas Lullaby
3. Jesu, Joy of Man’s Desiring
4. Still, Still, Still
5. O Holy Night
6. Mary’s Lullaby
7. Ave Maria
8. He Shall Be Born
9. Christmas Snow
10. St Stephen’s Day
11. This Christmastide
12. Come Unto Him
13. Angels’ Silent Night
The compact disc costs
$15, and all proceeds go to the research foundation. All production
costs, including studio time at the Rosewood Recording Company in Provo,
were donated by friends and family.
From the Back Cover
of Etheral Christmas:
Jamie Gibson is 22 years old. Both she and her brother Benjamin were
born with a very rare and serious genetic disorder called Recessive
Dystrophic Epidermolysis Bullosa, more commonly called E.B. Ben died
of E.B. in 1995. He was 19.
E.B.
is primarily known for its blistering effects to the skin and mucous
membranes. E.B. sufferers have defective skin and have no protection
against bumps and scrapes. Trauma from everyday activities such as eating
or brushing one's teeth causes pain, injury and scarring.
Although her hands
and feet looked quite normal at birth, Jamie's fingers and toes are
now crippled and webbed together, encased in scar tissue which restricts
bone growth. Jamie's disorder has also caused deformities and scaring
in her mouth and throat. When she was seven her battered esophagus scarred
shut and was replaced with a piece of her colon.
Her vocal cords are
now slowly eroding through years of reflux because she no longer has
a stomach valve. Jamie's mouth and throat are always raw with open sores
and blisters. Her tongue is so badly scarred that she can neither lift
it to touch the roof of her mouth nor thrust it forward to clearly enunciate.
Jamie has always loved
music. She played percussion in Junior and Senior High school until
her crippled hands finally stopped her. By 1995 voice became Jamie's
sole means of musical expression. It is a lot of work for Jamie to sing.
She must train, warm up and focus to get her body to compensate for
what she calls "all her EB. things". Jamie refuses to give
in to her disabilities. She sings even though people told her she could
not. Through hard work and determination, Jamie is a living example
of part of her own mission statement - "We are all here to succeed."
A
note from the producer:
"When I discovered Jamie's love for music, I knew this CD had to be
made. Her heavenly "boy soprano" voice is uniquely amazing. With limited
use of her tongue and jaw, and a mouth and throat full of open sores,
I marveled during recording sessions at her determination to pronounce
words, and hit those high notes! I have never heard one complaint from
Jamie. E.B. has physically limited her, but not robbed her of her love
for uplifting music and a desire to fulfill her goals. I hope you enjoy
these simple songs. They are filled with gratitude for another day of
life, a thankful heart, and the blessings of joy and peace. --Gaye Beeson
A note from Lorraine
Spaulding:
I have had the wonderful privilege of getting to know Jamie and her
mom and dad a little bit, and truly what wonderful people. Jamie is
a wonderful inspiration and the voice from heaven that can be heard
through her music is an experience I wish everyone could enjoy!! Her
CD is my absolute favorite! I listen to it all year long. It is certainly
not just for Christmas, it is for anytime I need to feel comfort from
the Lord. I truly feel she was given a gift through her voice, and comfort
is what I get from listening to it.
A note from the
Webmaster:
It is a great privilege for me to be able to make a page to advertise
Jamie's CD. The first time I heard it I got chills up my spine, as I
know how hard it must be for her to sing. My son, who has the same form
of E.B. as Jamie, amazes me every day with his determination and Jamie
shows the same determination and love in this CD. This is a must have.
Playing:
Le Cose Che Vivi by Laura Pausini
Be
Brave. Even if you're not, pretend to be. No one can tell the difference.
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Silvia | Sleeping
Angel Web Design Last Updated: March 16, 2004